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Elementary School Students Help Boy with Rare Disorder

22-month-old Blake Crawford has a rare, undiagnosed neurological disorder. Grace Christian Elementary School has adopted Blake as a ‘Sparrow.’

Posted: Mar. 14, 2018 5:11 PM
Updated: Oct. 4, 2018 2:10 PM

MEDFORD, Ore. -- 22-month-old Blake Crawford has a rare, undiagnosed neurological disorder. His mom, Samantha, said she noticed he wasn't reaching certain milestones like his twin brother, Brandt and took him to the doctor.

"We noticed he needed some help and something wasn't right so we looked into it. He actually has an undiagnosed neurological disorder. We still don't have an exact answer," said his mother, Samantha Crawford.

They've seen doctors across the county, from Boston to Stanford, California. So far Blake’s family knows his brain is smaller than what it should be at his age. He can't stand or walk and can't see very well. Although doctors still don't know what Blake’s disorder is, his mom remains positive.

"It's been hard but it's been amazing. It really is so special and beautiful and they have such a good bond. It's really made me a stronger person. It's made our families so much closer. I mean he's perfect so it's been amazing," Crawford said about her son.

She reached out to Sparrow Clubs for some help. Wednesday, Grace Christian Elementary School has adopted Blake as a ‘Sparrow.’ Kindergarten through 5th grade students will do about 250 hours of community service collectively. Each hour of community service is equal to $10 that will go to Blake and his family.

"It's amazing. It's so cool to see all the kids here and see all of the support. Just the Sparrow Club just what it’s about is awesome. We're really happy to be a part of it," Crawford added.

She said Blake has quite a journey ahead of him, but hopes Sparrow Clubs can make it easier.

"Just seeing him reach for things, smile more, play, and interact with his brother more and more each day. It's really beautiful and amazing and I really appreciate every second of both of my boys."

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