MEDFORD, Ore. — This weekend, you can lace up your tennis shoes to bring attention to a disorder only 1 in 10,000 people have.
The “Walk for Williams Awareness Walk and 5k Run” is happening Saturday. The goal is to put “Williams Syndrome” in the spotlight.
The genetic disorder comes with serious heart problems, developmental delays and overly social behavior. A local mom of a child with “Williams Syndrome” says awareness is needed.
“I’ve been to multiple doctors and they’ll say can you explain to me what Williams Syndrome is…you hope when you go to the doctor they can tell you more about it than you can tell them,” said mother Christy Johnson.
Registration is at 10 a.m. at Hoover Elementary. The run is at 10:30 a.m. the walk at noon. There will be a bounce house, face painting and games.
Organizers are asking for a donation of $20 per individual or $50 for a family.